Yesterday I had to do my “annual appointment” for cystic fibrosis clinic. This used to be the biggest, scariest thing I used to have to face. Now that I also have transplant testing, CF annual appointments are now quite easy. They’re just a very long day.
I had back to back appointments from noon to 5 p.m.. I saw many faces, answered many questions and by the time my doctor came in for the last appointment, my eyes felt like sand. I was getting tired and I was emotionally exhausted.
For years upon years, my lung function was 28%. I had declined to a point that if I needed to go get a few groceries, I would then have to clear my schedule for the next day because I needed to “recover.” I was tethered to an oxygen tank at all times day and night, often times getting tangled in the tubing and accidentally ripping it from my face. I was in the midst of transplant testing to see if I could get listed for a double lung transplant in order to give me another chance at life.
Then the miracles started to happen. My body began to make a comeback. I was feeling better, getting stronger, I was able to go longer periods of time without having to wear oxygen. Then getting to the point I just had to wear it at night. God began this miraculous road of healing.
I then started a new drug that came out for cf. I’ve mentioned this one before, it has a price tag of $300,000. And that’s when my comeback continued and gained momentum. My lung function was starting to be in the 30% range. I cried out to God that I wanted my lung function to hit 40% because I was 40 years old. Just once, I wanted those two numbers to match. I cried out, God answered. I hit 40, then 45, then I was at 48%. Complete disbelief. Praise God!
You talk about content!! I was content! My lowest lung function was 24%. God doubled that and gave me 48%. I was blessed, I was content! I prayed and worked hard to maintain that 48% which has been difficult with the heat and humidity we’ve had here in Ohio with days over 90 degrees.
Yesterday, I sat there with the technician and my mom, to recheck my lung function. I tried my best, which I do every single time, and then it popped on the screen. My new number, my new lung function. 50.
I shot out of my chair and screamed. My mom and I grabbed each other in a hug and were jumping around. Tears flooded our eyes, I shouted THANK YOU GOD! This is unbelievable, this simply DOES. NOT. HAPPEN. with CF. You decline, you don’t gain function. I wasn’t expected to live to see 18 years, I’m now 40, with IMPROVING lungs?! What?
This defies common sense, it defies science!
I get 3 tries for this lung function test and I did all 3. I hit 50 each time. I always like to try a technique where I slow down a bit. The tech let me try again, try number 4, I slowed down, then the number popped up. 52. WHAT?!
When I met with my doctor, who is a great man first and foremost, add to that an amazing Christian, top that off by being an amazing doctor and friend. He could not believe it. It doesn’t make sense.
God doesn’t make sense. What God can do blows minds. What God has done, blows science away. And I love it.
When God chooses to do things that ONLY He can do, it leaves us speechless. When it’s something that doesn’t make sense, that doctors cannot explain, that’s God. When it defies science, that’s God. When it defies, the deterioration of cf lungs, that’s God. When you see the trend on a flowchart that goes up and up and up, THAT’S GOD.
Sit back and trust in Him. Wait on Him. And when He does things that only He can do, thank Him. When others ask about it, answer “that’s God.”
God is good when I am at 24%, God is good when I am at 52%.
I’m thanking Him for this miracle and when people ask me about it, I’ll just say…..THAT’S GOD!!
Your “cyster” in Christ,